Name: Motor Neurone Disease Association
Address: Yarnton House, 14 Erson Ave, Royal Oak, Auckland
Telephone: 0800 444 474

Motor Neurone Disease downloadable pdf

Motor Neurone Disease New Zealand provides personalised motor neurone disease support in Northland for people living with MND, their whānau, carers and the health professionals involved in their care.

MND New Zealand is a charitable trust focused on improving quality of life, supporting research and advocating for people affected by motor neurone disease throughout Aotearoa.

What is motor neurone disease?

Motor neurone disease, also known as MND, is a progressive and life-limiting neurological condition.

MND damages the nerve cells that control voluntary muscle movement. Over time, it may affect a person’s ability to:

Move and walk
Use their arms and hands
Speak and communicate
Eat and swallow
Cough and breathe
Complete everyday activities independently

Everyone experiences MND differently. The symptoms, rate of progression and support required vary from person to person.

Personalised MND support

MND New Zealand provides support tailored to the needs and circumstances of each person and their whānau.

The team understands the practical and emotional challenges that can come with an MND diagnosis. Support is available throughout the person’s journey as their needs and circumstances change.

Connecting with services

People living with MND may receive care and assistance from several health professionals and community services.

MND New Zealand can help individuals and whānau connect with:

Health and disability support services
Relevant healthcare professionals
Community organisations
Information and practical resources
Other people and families affected by MND

These connections can help people understand their options and access appropriate support.

Support for whānau and carers

An MND diagnosis affects more than the person living with the condition. Family, whānau and carers may also need information, guidance and emotional support as they adjust to changing responsibilities.

MND New Zealand supports the wider network of people involved in a person’s care, helping everyone better understand MND and prepare for changing needs.

Support for health professionals

MND New Zealand also provides information and support for health professionals working with people affected by motor neurone disease.

This helps promote informed, coordinated care centred on the needs and preferences of the person living with MND.

MND research

MND New Zealand supports promising research in Aotearoa that aims to improve quality of life for people affected by MND.

The organisation also supports global research investigating possible causes and effective treatments for motor neurone disease.

Advocacy and awareness

MND New Zealand campaigns for people affected by motor neurone disease and raises awareness of the challenges they experience.

Its work aims to improve access to appropriate services, increase public understanding and ensure the voices of people living with MND and their whānau are heard.